Lolly has been so sleepy. Her poor little body has been working so hard.
Her first dialysis treatment went really well today. They did a very short treatment (1 1/2 hours) to see how her body would respond. Everything went well, and they were able to clean out her blood and remove a little bit of the extra water (she has not urinated on her own for nearly two days- despite all the IV fluids and IV diuretics she's received).
Ben and Sammi:
Sammi has been a dream come true through all of this. Since they were able to pinpoint Lolly's sickness, Sammi has been allowed in the room. We wear gloves when we change Lolly's diapers (E. coli can spread through fecal contact), and wash our hands like crazy, and do everything we can to keep Sammi safe from all the hospital germs.
The orange on Lolly's neck and chin is from the betadyne used to clean the site where they placed the catheter in her neck this morning.
She's pretty (and also pretty puffy)
This afternoon, my Aunt Donna, cousin Melissa, and her daughter Grace came by to see Lolly. A few years ago, when Grace was 6, she was hospitalized for a week with E. coli. Grace is the sweetest girl- she wears her emotions on her sleeve. She was so sweet, looking at Lolly. It was great to see someone who has been through this and came out okay. Thanks for coming to visit, Grace!
And the highlight of the entire day- Lolly woke up- FIGHTING MAD for a few minutes. It was awesome! I have said several times that Lolly had slept and slept. At first, we didn't worry because we were told it was totally normal. But after three days of not really seeing our girl awake at all, we started to get a little nervous. E. coli can cause neurological damage (brain damage, stroke, etc). I asked the doctor (who we LOVE) how concerned he was with Lolly not waking at all- he said between 1 and 10, he was at a 5. He told us to watch her tonight, and if she didn't start waking up, a neurologist would be seeing her tomorrow. Soon after the doctor left, Lolly finally woke up- screaming and mad. She was yelling "yucky!!!" and was terribly uncomfortable. She was super spunky and mad and we were finally able to get a little glimpse of our Lolly. It was awesome. Once Lolly is finally awake, we our going to work hard to keep her happy!
She was mad for about 10 minutes- and let me carry her for just a minute (although she was still mad) before she checked out for what will probably be a 10-hour nap.
We are hoping to finally start seeing some improvements tomorrow.