Monday, September 27, 2010

Monday, September 27, 2010

Lolly and Sammi (Sunday, September 26, 2010)
Lolly is doing really, really well!

Things have been very busy here, but I'll do a very quick update.
Lolly hasn't needed dialysis for three days now!  She has been peeing enough (sometimes 4 diapers a day!) to not need it, but may still need it occasionally.

She hasn't had ANY pain meds for about three days now, which is fabulous- she was in SO MUCH PAIN several days ago.

Her Pneumatosis coli is slowly improving, and she only gets 1 KUB x-ray a day (instead of 4) to monitor it.

Her pancreatitis is getting worse (as determined by enzyme levels from her labs), but she doesn't seem to be in much pain at all.  She had an ultrasound on her pancreas this morning to look for a pseudocyst (sp?)- a pocket of fluid- but nothing was detected, which is good. 

She is doing well with her TPN IV feeds- and is not allowed to eat or drink anything.  Surprisingly, she is doing remarkably well with it.  Yesterday, she did get to venture out to church, and wanted a drink from the sacrement cup, but didn't get mad at all that we wouldn't give her one.  She has only asked for a drink a few times, but doesn't seem tormented by thirst like she was a week ago on NG tube feeds.  I count that as a remarkable blessing.

She hasn't needed a blood transfusion for several days (not sure how many...all the days run together now).  Her lab work this morning show she doesn't need one today, although her red blood cell count is low enough she might need one tomorrow.

She is interesting in doing things, although she does seem to tire quickly.  She has laughed several times and has given us lots of smiles, but we can hardly get her to say a word.  

She finally let me do her hair yesterday, although she wasn't happy about it..  She looked absolutely adorable all fixed up. 

She is slowly getting the life back in her.  She has made amazing progress from where she was even a few weeks ago.

She is making very slow, day to day progress, but we are grateful for any little bit of progress that we see.  Thanks so much for all who have served our family in little and big ways.  We have been so uplifted by the kindness of friends and family.  And we're so encouraged by all the progress we are seeing in Lolly.

15 comments:

  1. So, so, sooooooo good to hear! And she can suck her thumb again! Yeah for Lolly!

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  2. I am so glad that Lolly is getting better. I love that picture of her and Sammi.

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  3. That is wonderful news! Keep it up!

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  4. Such beautiful girls. I cant believe how good lolly pooks compared to the last pictures. And also that Sammi is getting so big (and making lolly look so tiny). You have been gone far to long. And im so gratfeul for the blessings and the healing that we are seeing from day to day. Love you all.

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  5. Good news! She looks so cute in the picture.

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  6. PS lolly those are some super cute princess pj's. A princess just like you. : )

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  7. Love this picture!!! It's so good to hear Lolly's doing better and improving. How are YOU?!!! Are you getting ANY rest at all? We love you guys and really hope you all get to come home sooner than expected!

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  8. She looks like she feels better. I'm so glad that her health is improving and she is in good spirits. Keep it up Lolly!!

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  9. such great news...i love happy days!

    p.s. labs were fine!? we'll wait for an echo to see about decreased heart function possible beign the culprit??

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  10. What great news. You know how we try to pose are kids the same way at the same age so we can make cute scrapbook pages of them. Well look at it this way you can make cute pages of Lolly and Trey at Primaries. Not exactly planned but a silver lining. Ha Ha. I am going to be in Salt Lake on Saturday for conference and though I am praying you will be home by then I want to come see you if you are still hanging out in the hospital. Love ya Rachel

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  11. Mark and I were going to try to come to see you today but spent toooooo much time in the cell phone store trying to get new phones. We are back on the road and will continue to watch the blog. You are all in our thoughts and prayers. Love you, Becky

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  12. Robbie, what super cute little girls you have! I love this picture! So glad Lolly is progressing! I can hear the excitement and relief in your words. Hope you all can come home soon!

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  13. Oh yay! That is such great news! Darling picture of your babies as well.

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  14. Glad to see some upward progress. I hope that means it's the beginning of the end of her hospital stay and you're both home before too long!
    That pic is adorable and I love Sammi's headband!

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  15. RObbie and Family

    I am so glad to hear that things are improving! I saw your beautiful little Trey yesterday when I was at the school and it brought tears to my eyes just to see his beautiful healthy little face. I would have given him a squeeze for you but he probably would have thought I was a little strange. Love you and love your kids
    Melissa W

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