Monday, September 13, 2010

Lolly Update

I'm finally at Primary Children's with Ben and Lolly.  When I walked in, Lolly was so lethargic and tired that she didn't really care that I was here.  :(  But she did get sad when I left the room.  She has woken briefly a few times since I've been here, but has mostly just slept, which is a good thing.

The doctors are quite certain that Lolly has "Hemolytic Uremic Syndrome" caused by e-coli.  They are convinced that Tyler and Trey also had e-coli (Tyler was sick with the same symptoms at the end of August and Trey was sick a few days later- and went to the ER twice in one day).  HUS (Hemolytic Uremic Syndrome) usually occurs in kids 5 and under- Lolly was not able to cope with the e-coli like the boys did.

They don't really have a treatment for HUS- they just treat the symptoms.  The handout they gave us in the hospital says "HUS is a rare disorder that affects children, most often under the age of five.  HUS outbreaks usually happen during the summer months, in clusters.  Infected children have stomach pain, vomiting, and severe, bloody diarrhea.  Even after the vomiting and diarrhea stop, they may still be pale, tired and irritable.  Your child will be hospitalized until her kidneys work well and her nutrition is good.  The average hospital stay is 10 to 14 days, depending on the seriousness of the disease (YIKES!!!)"  There is the possibility that Lolly will need a transfusion or dialysis...but only time will tell.  It sounds like the healing process is very slow and gradual, so we'll take it one day at a time.

Thanks to everyone for all the phone calls, texts and emails.  We appreciate all the support so much.  It really has given us a big lift today with all the craziness around us.

I'll update tomorrow.
Robbie 

9 comments:

  1. You are all in my prayers. Hope you get home soon. Let me know if there is anything I can do. Jana

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  2. THANK YOU for updating! That is just CRAZY! I'm glad you are down there, getting answers, and the treatments that she needs. We're still praying for you guys and still willing to help ANY way we can!!! LOVE YOU ALL. Give Lolly a big kiss from us.

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  3. I'm so glad that they have figured out what the cause is although it sounds like a long week or so. If there is anything you guys need let us know. Also if Ben needs anything done around the dairy tell him to call Val I know something has been mentioned to him already. We are all willing to help in any way we can. Love you guys and keep your heads up and get sleep it sounds like your going to have to stay strong and happy to get Lauren healthy again.

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  4. We heard about this from Gwen today. I have been praying and thinking of you all day. Couldn't go to sleep until we go the update. If there is anything I can do to help please let me know.
    love you,
    Holly

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  5. How did she get it? Did she eat something? Or was it viral or bacterial? Poor little thing!

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  6. Thanks for the update. At least they know what it is and hopefully can help Lolly start feeling better. We love you guys!

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  7. I am so glad for an update, although her diagnosis doesn't sound like much fun for anyone! Are you in the PICU or on the medical floor? I hope that she can get past this quickly hopefully without needing dialysis too! Our prayers and well wishes are with you all!

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  8. Thanks for the update, Robbie! Lots of phone calls asking about Lolly and you! Everyone loves you and your family! Know you are being prayed for by countless people! We all love you!

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  9. i swear i just checked...nothing! now a day later, all this!!??? poor sweet lolly and mom/dad! im thinking about you guys!

    hang in there....what is visitor status now?

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