Here's what we know-
Last night, we were jubilant, and I reported that Lolly had woken up for about 15 minutes. She was crying out and upset, and it was good to see. We really thought that she was FINALLY coming out of her cloud of sleepiness. We were thrilled. When she was awake, she was not all the way there- she did open her eyes a little, but they still looked "drugged" (from her morning sedation to place the catheter in her neck). Soon after the short period she was awake, she slept and slept and slept.
Today, she has had little moments of crying out and making sounds, but true to the patten over the past 4 days, she has been asleep 99% of the time.
We were concerned about it yesterday, but the docs thought she was just slow to come out of the anesthesia. Today, though, she was no better than yesterday (still completely out of it), so the docs decided it was time to call in neurology.
The neurologist came in and evaluated her, and was concerned with a few things. A few of her reflexes are different from what they would expect, and the fact that she has not been fully awake for FOUR days is very concerning.
I was able to go in with Lolly for a CT scan, and we got the great news that there is no bleeding on her brain (perhaps the first bit of good news in several days). At the moment, they are doing an EEG, to measure her brain waves. Threy are trying to determine if she is having seizures (a brain storm- we do not notice any convulsive bahavior, but there could be problems going on in her brain).
I should mention that she is NOT brain dead. Her brain IS fully functioning. What we are hoping for is that Lolly has "encephalopathy." The docs are hoping that her brain is just functioning slowly due to all the other problems she is having. If it is encephalopathy, she could make a full recovery. This complication is one that we had not planned for or prepared for in any way. Everything today has not been easy to hear, and we are extremely concerned.
I'll try to report back after we get news from the EEG.
it is so hard to believe that all of this has come from a spout of ecoli. I think I'm going to be more like Kenna and become a COMPLETE GERM-A-PHOBE!!! Lolly please wake up and literally give your parents (excuse me) H*** so we all know your doing okay. Love you guys!
ReplyDeleteWe hope she wakes up soon! Thanks for the update!
ReplyDeleteOh Rob, I am so sorry for this turn of events. I hope that her EEG is normal and that her little body is just making preventative measures to make sure she recovers quickly!!!
ReplyDeleteWe continue to PRAY!!!
ReplyDeleteFriends
ReplyDeleteMany are doing a special fast for Lolly tomorrow. Please join us.
Robbie and Ben, hang in there. We all love you and are praying for dear little Lolly.
oh robbie....im just spinning thinking about it all! all brooklyn has been saying all day is "lolly sleeping mom?" and i'd tell her yes, then she'd say "wake up lolly.... wake up"
ReplyDeletego lolly!!!
Dearest Ben, Robbie and family,
ReplyDeleteMy thoughts and heartfelt prayers are with you and Lauren. May Heavenly Father bless each an every one of you!! If there is ANYTHING we can do please let us know!!! Love you all!!!!
Seriously breathing a small sigh of relief. I want to come see those pretty eyes, Lolly! Hoping for more good news with the EEGs.
ReplyDeletewere thinking and praying for you, your amazing robbie remember that! we love little lolly and we are hopeing for a good day tommorow! love ya char
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