tired
thirsty
frustrated
sad
tired. of. it.
She is on "bowel rest" because of her pancreatitis until tomorrow, when they'll place the NJ tube. She is supposed to be NPO (no food or drink in her mouth), but they are allowing her to have ice chips or little sips of water. Since she is two, and S.T.U.B.B.O.R.N. and would rather have APPLE JUICE than WATER, she is choosing to have nothing.
Tonight, she has been moaning and tossing and turning. Her cry sounds like a little kitten. It is so, so sad. Mom and I have been sitting here crying and crying. It is HEARTWRENCHING. Poor mom has it double bad because she is worried about ME and LOLLY.
Lolly has not wanted to be carried at all today. She doesn't want to be distracted or talked to or played with. To get her asleep, I just sit close by, so she knows I'm here, and listen to her moan as she finally drifts off. As I was sitting here just now, waiting for her to go to sleep so I could go (mom is taking another night shift...bless her heart), the nurse came in with an anonymous delivery. Someone had left a gift, for Lolly, with the security guards downstairs. The nurse brought it in- it was a pink Fisher Price doctor's kit with the words, "Lolly's Payback Kit" written on it. Lolly immediately quit moaning and perked up when she saw it. I asked her if she wanted it, and she did. Then she wanted to hold and play with it while she rested in bed. A small miracle, I tell you what. She has not wanted to play with ANYTHING all day. Nothing. She's holding all her doctor kit toys as she drifts to sleep right now. Whoever brought it, thank you for making my girl's night! She's almost asleep now, with a pink blood pressure cuff in her hand. We even got out the camcorder to mark this momentous occasion- she was PLAYING!!!
Tender mercies and small miracles get us through each day. We are overwhelmed at the outpouring of support for our little girl. Thanks to everyone for checking on our girl throughout the day. Her blog is about 10,000 times more popular than my blog ever has been! Thanks for loving our girl. We think she's amazing.
Oh, Robbie, my heart so feels for you! Hang in there! We appreciate your updates, it helps us know what to pray for!
ReplyDeleteWe all think YOU are AMAZING, Robbie!!! (like mother, like daughter!) It is so incredibly tough to sit by and watch one of your children go through so much pain and agony! We, as parents, would much rather go through it ourselves! This has been such a long, hard road for all of you. I'm so glad for the small miracles that you get to experience in the process. We all love you and your dear little Lolly so much! Stay strong..."THIS TOO SHALL PASS". More miracles to come, I'm sure!
ReplyDeleteof course she is amazing! Look at who her mother and grandmother are! Hang in there Robbie! I continue to pray for your sweet family every day :)
ReplyDeleteA future doctor in the making. Last night at the harvest dinner, Luke and I had our annual photo op. He was being really shy, trying to hide his face behind one hand but I pulled it down and not only got a smile but a giggle as well. Holly captured it.
ReplyDeleteRobbie, just wanted to let you know that we are praying for all of you and hoping this trial ends SOON! We have a nephew who got e coli on his mission a year ago and is doing great now (after 2 weeks in the hospital). Hang in there, I'm sure sweet Lolly will be back home before you know it. Hugs!
ReplyDeletePoor thing. Maybe you can talk them into adding a little bit of applejuice to her ice chips...kind of like a snow cone??? Even anything to add a little flavor to the one thing she can munch on. Thank heavens for a the payback kit bringing a smile to her face. I can just imagine her demanding to check her nurses blood pressure each time she comes in!
ReplyDeleteI can't even imagine what you're going through. So glad you have such supportive family. We can't do life without them! Lexington KY is praying for you!
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