Saturday, September 25, 2010

Today is a much better day for Lolly.  Ben stayed here last night, and I think they both got some sleep.  Pain Services prescribed Dilaudid (an amazing painkiller) and Valium, which have both been helping immensely to keep her calm and feeling good.  Poor Lolly had so many things done yesterday (PICC line, 4 x-rays, dialysis, blood transfusion, Andersen tube placed in her nose to suction out her stomach for the next several days, etc.).  It was a really long, very busy day, and very stressful for her.  She was given a lot of both medications, and by the evening, her respiratory rate was about 10-12 breaths per minute (which is very slow).  The nurse held off on giving her any more for the evening (it has a long residual effect), and she still did very well.  She has had only minimal amounts of valium today, and she is feeling really good. 

Her antibiotics seem to be kicking in and stopping her Pneumosis coli from getting any worse.  The surgeon came to check on her today, and ordered another KUB x-ray for today.  After that, she'll get one x-ray a day to monitor the Pneumosis coli.  We are very grateful that they were able to get on top of it so early, and think that she is also feeling much better because that problem is being addressed.

It's been a very quiet day for Lolly- she has peed FOUR times today- and did not need any dialysis!!!  Her blood pressure has been high, but is coming down as she pees of some extra fluid. 

She seems to be feeling good, and wanted me to carry her when I got here this afternoon.  She looks so pretty, but does not want to wear anything but a diaper, will NOT allow me to touch her hair, and doesn't want any chapstick (even though her lips are soooo dry), and she still looks like a princess.

I have had a wonderful day with the boys and Sammi.  We took the boys miniature golfing, which they were so excited about.  We ran some errands and had a good time together before coming up to the hospital.  There were several arguments and issues with all three brothers in the back seat of the van.  Although fights aren't my favorite, I am very grateful that they have each other to fight with.  Little Lolly's car seat was too empty for my liking.  We missed her, but she was having a good time at the hospital with Ben, watching football on his lap, just like she does at home.

Mom and the kids and I are at the hospital while Ben is at the apartment, watching the BYU game.  We had all the kids in the playroom together- Luke actually made Lolly LAUGH for the first time.  She hasn't shown a great deal of excitement at seeing them at first, so it was really good to see her show some signs of her normal self again.

Things are good today.  Very good.