Monday, September 27, 2010

Lolly and Sammi (Sunday, September 26, 2010)

Lolly is doing really, really well!

Things have been very busy here, but I'll do a very quick update.

Lolly hasn't needed dialysis for three days now!  She has been peeing enough (sometimes 4 diapers a day!) to not need it, but may still need it occasionally.

She hasn't had ANY pain meds for about three days now, which is fabulous- she was in SO MUCH PAIN several days ago.

Her Pneumatosis coli is slowly improving, and she only gets 1 KUB x-ray a day (instead of 4) to monitor it.

Her pancreatitis is getting worse (as determined by enzyme levels from her labs), but she doesn't seem to be in much pain at all.  She had an ultrasound on her pancreas this morning to look for a pseudocyst (sp?)- a pocket of fluid- but nothing was detected, which is good. 

She is doing well with her TPN IV feeds- and is not allowed to eat or drink anything.  Surprisingly, she is doing remarkably well with it.  Yesterday, she did get to venture out to church, and wanted a drink from the sacrement cup, but didn't get mad at all that we wouldn't give her one.  She has only asked for a drink a few times, but doesn't seem tormented by thirst like she was a week ago on NG tube feeds.  I count that as a remarkable blessing.

She hasn't needed a blood transfusion for several days (not sure how many...all the days run together now).  Her lab work this morning show she doesn't need one today, although her red blood cell count is low enough she might need one tomorrow.

She is interesting in doing things, although she does seem to tire quickly.  She has laughed several times and has given us lots of smiles, but we can hardly get her to say a word.  

She finally let me do her hair yesterday, although she wasn't happy about it..  She looked absolutely adorable all fixed up. 

She is slowly getting the life back in her.  She has made amazing progress from where she was even a few weeks ago.

She is making very slow, day to day progress, but we are grateful for any little bit of progress that we see.  Thanks so much for all who have served our family in little and big ways.  We have been so uplifted by the kindness of friends and family.  And we're so encouraged by all the progress we are seeing in Lolly.